NYCBL to partner with ALS Association
NYCBL to partner with ALS Association
FOR IMMEDIATE RELEASE
[Syracuse, NY] – The New York Collegiate Baseball League (NYCBL) is partnering with the ALS Association Upstate New York Chapter to raise funds and awareness leading up to their 2018 All-Star Game between the NYCBL and ACBL (Atlantic Collegiate Baseball League). The All-Star game will be played at the Onondaga Community College baseball complex on Monday July 9th at 6:30 PM.
The NYCBL has challenged each team to raise $250 each to help provide programing to those living with ALS. Each team in the NYCBL and ACBL has a dedicated contribution page where donations can be made at web.alsa.org/goto/NYCBL. The ALS Association Upstate New York Chapter provides resources, services, and programs to improve the quality of life for individuals and families coping with ALS throughout the 48 counties in Upstate New York.
Founded in 1978, the NYCBL is a summer wooden bat development league for professional baseball. The league is partially funded by Major League Baseball and is sanctioned by the NCAA where it provides college players the opportunity to develop their skills at a high level of play and be evaluated by professional scouts. Located in Upstate New York, The NYCBL is comprised of 12 franchises. The ACBL was founded in 1966 by some of the leading baseball figures in the Metropolitan New York Area. The ACBL is comprised of 6 franchises.
“This is a great opportunity for our league to partner with the ALS Association Upstate NY Chapter surrounding our All-Star game vs. the ACBL, said commissioner Joe Brown.” “Supporting this tremendous organization designed to educate and raise funds for ALS was a perfect match for us, we have challenged our 12 franchises along with the ACBL 6 franchises to help a wonderful worthy cause raise a great deal of funds to beat ALS.”
Liz Krisanda, Executive Director of the ALS Upstate New York Chapter, said that “ALS progresses at such a rapid pace that people with ALS often struggle to emotionally come to terms with the disease in time to make critical decisions about their care. Our highly trained care services team complements patients’ medical care by helping them translate recommendations into reality in the home environment with the goal of assisting families to “live with” ALS as fully as is possible. Partnering with the NYCBL not only raises funds to support our programming; it helps us raise awareness for the need for continued research and patient advocacy.”
Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. There is currently no effective treatment or cure for ALS and the average life expectancy after diagnosis is two to five years.
The ALS Association is the only national not-for-profit health organization that is dedicated solely to the fight against ALS. Our mission is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. At the national level, our primary focus is on the critical areas of research and advocacy. Since our founding in 1985, we have spent and committed to $165 million on research. Nearly half of that was committed in just the last three years following the Ice Bucket Challenge in 2014. The Association and its network plays a lead role in advocating for increased public and private support of ALS research and public policy initiatives that responds to the needs of people with ALS. Recent public policy gains include: waiving the 24-month waiting period for SSDI, preserving access to complex rehab technologies, the designation of ALS as a 100% service connected disability for military veterans, and the passage of the Steven Gleason Enduring Voices Act this past February.
Notably, until there is a cure, there is care. The ALS Association Upstate New York Chapter helps patients and families cope with the day to day challenges of living with ALS by providing home visits, information, resources, respite and assistance grants, as well as referrals to a wide variety of community supports and services.
Individuals wishing to contribute may do so by going to the following link:
Contact Information:
Elizabeth Krisanda
(315) 413-0121
or
NYCBL Marketing
(315) 751-2792
